SUPPORT FROM OTHERS AFFECTED BY SMA OR OTHER DISABILITIES

Many families and adults find it helpful to have contact with others who have had similar experiences and understand the range of challenges and emotions they face. It can help to share experiences, tips and advice. You can do this through an established patient support group or one of the many online social communities.

CureSMA Canada – offers resources and support, including occasional social events, and gives details of a number of SMA focused communities. www.curesma.ca

Muscular Dystrophy Canada (MDC) also offers resources and support for families affected by SMA. Visit www.muscle.ca for more information.

Love for Lewiston Foundation provides financial assistance for medical needs and therapy as well as resources and support for families affected by SMA and organizes fundraising events that aid in finding a cure for Spinal Muscular Atrophy through SMA Research. https://loveforlewiston.ca